Question
Please may I have some information on syringomyelia? I am interested in contacting other people in South Africa who have the illness. Please could you give my email address at the end of the section?
Answer
Syringomyelia is a rare condition in which there is a fluid-filled cavity (syrinx) within the substance of the spinal cord (syringomyelia) or the brainstem (syringobulbia).
About 50% of these are congenital, that is, present at birth. For unknown reasons they often expand during the teens or young adult years.
The remaining 50% arise as a result of tumors or trauma.
Syringomyelia commonly arises in the cervical, or neck, area, but can extend across the whole length of the spinal cord.
The first symptom may be loss of pain and temperature sensation in the fingers. Extension to the rest of the body follows. There is commonly a cape-like loss of sensation across the shoulders and back. As the lesion expands, spasticity and weakness of the lower limbs results.
Treatment is difficult as surgery is often unsuccessful, and severe neurological deterioration may not be reversible.
If anyone is interested in starting a support group for those with this condition in South Africa, please contact Karin.
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